A new diagnosis can be incredibly scary. You feel a whirlwind of emotions, and sometimes you don’t know what to do. Take it from someone who has quite a few under her belt, although it feels like it more often than not, it’s important to remember that all hope isn’t lost. There are a few things you can do to cope with your diagnosis.
I had an appointment this afternoon with my rheumatologist, and it was a bittersweet one. Although I got some answers, I left feeling like I’ve hit a wall, and my OCD is creeping in.
I’m attending one of my favorite conferences this week! I’m super excited, but I figured I should make a post with my tips for getting through a convention as a spoonie.
Anyone with a chronic illness of any kind attempting to make it through the education system deserves a standing ovation. Anyone with a chronic illness who couldn’t make it or managed to make it deserves a standing ovation. Why? Let’s be real. The education system doesn’t exactly want to play nicely with those of us with chronic illness.
Those of us with any type of illness, whether it be chronic or mental, have felt this before. Even those of us without any illnesses at all have felt this way one time or another. The burden feeling gets worse when you overhear a family member or friend mentioning you, and they make it sound as though you’re an inconvenience to them. Although it may be unintentional on their part, it doesn’t make your feelings hurt any less—particularly if you already feel as though you’re a burden. How do we get past feeling like a hassle to the people around us?
My memory is strange. I can’t recall a recent conversation, but I can recall lyrics to a song in a movie I watched in first grade (she combed her hair just once a year rissledy rosseldy mow mow mow). Thanks to brain fog, things aren’t much better. Brain fog can be frustrating and annoying. There are several ways I cope with mine, but I find these methods most helpful. Continue reading “How I Deal With Brain Fog”
I dislike ableism. It bothers me how subversive it is, and I seriously dislike how people around you can say things that are ableist and they don’t get how ableist that statement is. It’s awful. What bothers me the most is how insensitive statements over the years can build up and lead to internalized ableism.
Nearly 3 weeks into 2018 and I’m working steadily to achieve my goals. Continue reading “2018: Let’s Continue”
A Disney vacation is a dream vacation for a lot a people. If you have a chronic illness, it’s a trip that can either be really fun or completely miserable. The trick to having an enjoyable Disney vacation is in the planning. If you’re a spoonie, or anyone who needs extra pixie dust, I have five tips to help you with planning a Disney Trip. Continue reading “5 Tips for Planning a Disney Trip: Spoonie Edition”