A new diagnosis can be incredibly scary. You feel a whirlwind of emotions, and sometimes you don’t know what to do. Take it from someone who has quite a few under her belt, although it feels like it more often than not, it’s important to remember that all hope isn’t lost. There are a few things you can do to cope with your diagnosis.
Anyone with a chronic illness of any kind attempting to make it through the education system deserves a standing ovation. Anyone with a chronic illness who couldn’t make it or managed to make it deserves a standing ovation. Why? Let’s be real. The education system doesn’t exactly want to play nicely with those of us with chronic illness.
Those of us with any type of illness, whether it be chronic or mental, have felt this before. Even those of us without any illnesses at all have felt this way one time or another. The burden feeling gets worse when you overhear a family member or friend mentioning you, and they make it sound as though you’re an inconvenience to them. Although it may be unintentional on their part, it doesn’t make your feelings hurt any less—particularly if you already feel as though you’re a burden. How do we get past feeling like a hassle to the people around us?
I dislike ableism. It bothers me how subversive it is, and I seriously dislike how people around you can say things that are ableist and they don’t get how ableist that statement is. It’s awful. What bothers me the most is how insensitive statements over the years can build up and lead to internalized ableism.
A Disney vacation is a dream vacation for a lot a people. If you have a chronic illness, it’s a trip that can either be really fun or completely miserable. The trick to having an enjoyable Disney vacation is in the planning. If you’re a spoonie, or anyone who needs extra pixie dust, I have five tips to help you with planning a Disney Trip. Continue reading “5 Tips for Planning a Disney Trip: Spoonie Edition”
I’ve spent the last month and a half being so busy that I haven’t had time to really stop and be in the moment. Hours turned to days which turned to weeks. The routine of waking, working, homework, meeting, sleep became such a blur that I started losing my sense of time and reality in the process. As I’m lying here now, typing this out on my phone, I’ve realized this is the first time in a while that I’ve really had time to stop and write out how I’m feeling.
I also realized that the only reason why this is, is because my body has forced me to do so.
I increasingly find myself practicing self-preservation. It often feels like I’m treating myself like a child. I ensure I’m watching mindless shows, make myself take naps if I’m too tired, unplug more often, and if I’m bothered I try to do something I know will bring me joy. I’ve noticed doing this helps my mental health a bit simply because I’m taking more control over the way I spend my time and media I intake.
Of course one should stay away from whatever may make their mental health worse, but oftentimes it’s not that simple. In using self-preservation, I find that I can better handle situations when avoidance is impossible.
Continue reading “Preserving Myself”
I did it! All of my hair is shaved off, and it’s exhilarating. I’ve used this word so many times today that it almost has no meaning, but I feel absolutely liberated!
I have never felt so optimistic about a new year before. It’s like I’ve taken off a really old pair of my glasses and put on the pair I have now (or the new pair that will be ready for pickup in two weeks). Continue reading “2015”